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Hemophilia

Hemophilia

Hemophilia is an inherited bleeding, or coagulation, disorder. Children with hemophilia lack the ability to stop bleeding because of the low levels, or complete absence, of specific proteins, called "factors," in their blood that are necessary for clotting. Proper clotting of blood helps prevent excessive bleeding.

About the Hemophilia Treatment Center

The Long Island Jewish Hemophilia Treatment Center at North Shore-LIJ Cancer Institute serves as the federally designated regional hemophilia program for Long Island. The center provides comprehensive services to children and adults with hemophilia and their families, von Willebrand disease and related disorders.

The Treatment Center is located in the Hematology/Oncology Building in Room 350.
Telephone: (718) 470-7380
Fax: (718) 347-8903
ER Hotline: (718) 343-6776
E-mail the Hemophilia Treatment Center: hemophilia@lij.edu

Mission/Purpose

"We are committed to providing lifelong, accessible, state of the art, family centered hemophilia treatment. Our mission is to foster a high level of autonomy in the management of hemophilia through continuous family and patient education. We believe this goal is facilitated through community advocacy that promotes optimum treatment for all affected families."

The Team Approach

The Regional Comprehensive Hemophilia Treatment Center offers the skills of experienced hemophilia specialists and provides the following services:

  • Emergency Care
  • Pediatric and Adult Diagnostic Consultation
  • Comprehensive Hemophilia Care including HIV Services
  • Home Infusion Therapy
  • Social Work
  • Individual and Family Counseling and Support Groups
  • Psychology and Psychiatry Services
  • Restorative and Preventive Dental Services
  • Orthopedic Surgery
  • Physical Therapy
  • Genetic Counseling
  • Lifelong Patient and Family Education
  • Community Outreach and Advocacy
  • Special Coagulation Laboratory Services 

Women and Bleeding Disorders

If you, or someone you know, have any of these symptoms, you may have a bleeding disorder:

  • Bruise easily
  • Have heavy periods
  • Have frequent nose bleeds
  • Have unusual bleeding from the mouth or gums
  • Have excessive bleeding after you have teeth pulled or after you had a tonsillectomy

Hematologists recommend testing adolescent girls or women with very heavy menstrual periods (lasting more than seven days or soaking more than one or two pads or tampons every two to three hours) or individuals with a family history of bleeding problems.

Von Willebrand disease may be as prevalent as 1 in 100 people and affects both males and females. However, its impact is more felt by women because of gynecological difficulties. Therefore, heavy periods in the absence of a gynecologic disorder might be due to von Willebrand disease.

Related links:

Hemophilia Cancer Clinical Trials

The North Shore-LIJ Cancer Institute offers a full array of clinical trials. The result of this research not only impacts survival, but also enhances the quality of life. For more information about clinical trials for Hemophilia, visit Cancer Clinical Trials.

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